Project Lead

Kathe Holmes

Lead partner

Royal Children’s Hospital

MacHSR Future Leaders Fellowship program (2023 cohort).

Solid-organ transplantation offers long-term survival for children, however, there is an increased risk of low health-related quality-of-life related to physical, psychosocial, cognitive, and school functioning compared to healthy peers. Patient-reported outcome measures (PROMs) collect these data. Integrating PROMs into routine can facilitate better communication with patients and their families, patient-centred care, and resource allocation to improve outcomes meaningful to patients. In Australia, PROMs integration in paediatric transplant care is not established. This project will explore stakeholder perspectives in PROMs implementation in transplantation services to understand barriers and facilitators to implementation, providing a framework for the development of a co-designed implementation strategy.

Ultimately, successful and sustainable implementation can inspire and provide evidence for spread of innovation to non-transplant services within the RCH, and to other paediatric services throughout Australia. I hope the skills and knowledge gained from the Fellowship will allow me to lead and support the implementation of PROMs throughout the institution, to support all patients to be able to thrive.