Ethical conduct and practice in Indigenous health research - Melbourne Academic Centre for Health

Gabrielle Ebsworth, Co-chair states “The ALG created this webpage to have resources easily accessible both for education of staff but also to address the cultural load Aboriginal staff members face in our organisations. Aboriginal staff members receive constant emails, often unrelated to their roles, requesting resources across various topics in health, research, and education. This page allows MACH partners and staff to access reputable resources endorsed by members across the ALG.

I give my thanks to the valued members of the Aboriginal Leadership Group who contributed to the development of the resource page, and I look forward to being able to send this webpage around to colleagues as I know many will benefit.“

Brough, M. 2010. Healthy Imaginations: A social history of the epidemiology of Aboriginal and Torres Strait Islander Health. Medical Anthropology: Cross-cultural studies in health and illness, 20, 65-90.
Humphery, K. 2000. Indigenous Health & ‘Western Research’. Discussion Paper No. 2. Melbourne: Vichealth Koori Health Research & Community Development Unit.
Humphery, K. 2001. Dirty questions: Indigenous health and ‘Western research’. Australian and New Zealand Journal of Public Health, 25, 197-202.
Thomas, D. P. 2004. Reading doctors’ writing: Race, politics, and power in Indigenous health research 1870-1969, Canberra, Aboriginal Studies Press.
Thomas, D. P., Bainbridge, R. & Tsey, K. 2014. Changing discourses in Aboriginal and Torres Strait Islander health research 1914-2014. Medical Journal of Australia, 201, s1-s4.
Onemda VicHealth Koori Health Unit 2000. We don’t like research…But in Koori hands it can make a difference. Melbourne: Onemda VicHealth Koori Health Research and community Development Unit, The University of Melbourne.
Onemda VicHealth Koori Health Unit 2007. We can like research…in Koori hands: a community report on Onemda VicHealth Koori Health Unit’s Research Workshops. Melbourne: The University of Melbourne.
Rigney L-I. Internationalization of an Indigenous Anticolonial Cultural Critique of Research Methodologies: A Guide to Indigenist Research Methodology and Its Principles. Wicazo Sa Review [Internet]. 1999 [cited 2021 Jan 28];14(2):109.
Thomas D. 2001 The beginnings of aboriginal research in Australia

marra ngarrgoo, marra goorri: The Victorian Aboriginal Health, Medical and Wellbeing Research Accord

Onemda VicHealth Koori Health Unit 2001. Research – Understanding Ethics’, report of the workshops held in June 2000
The Ethics Of Aboriginal Health Research: An Annotated Bibliography Daniel McAullay, VicHealth Koori Health Research & Community Development Unit Discussion Paper No. 5 2002
A Community Report for Onemda VicHealth Koori Health Unit, Stewart 2005
Humphery 2003, The development of the National and Medical Health Research Guidelines: Discussion paper and Oral history
Humphery 2002, Setting the Rules: The Development of the NHMRC Guidelines on Ethical Matters in Aboriginal and Torres Strait Islander Health Research
Gerais, 2012 AIATSIS Guidelines for Ethical Research in Australian Indigenous Studies
Burchill et al, 2022 Ethics guidelines use and Indigenous governance and participation in Aboriginal and Torres Strait Islander health research: a national survey

Harfield 2020, The Aboriginal and Torres Strait Islander Quality Appraisal Tool
Harfield 2020, Assessing the quality of health research from an Indigenous perspective: the Aboriginal and Torres Strait Islander quality appraisal tool. BMC medical research methodology, 20(1), 1-9.
Huria, 2019, Consolidated criteria for strengthening reporting of health research involving indigenous peoples: the CONSIDER statement. BMC medical research methodology, 19(1), 1-9

TASA 2019 – Keynote 1 – Professor Maggie Walter – Indigenous policy, fracosomania and indigenous sovereignty
AITSIS guidelines
GIDA CARE Principles
Rainie, Indigenous data sovereignty Chapter 21
Kukutai 2016, INDIGENOUS DATA SOVEREIGNTY: TOWARD AN AGENDA. ANU Press

2014 Koorified Aboriginal communication and well-being.
Dudgeon, P., Bray, A., Darlaston-Jones, D., & Walker, R. (2020). Aboriginal Participatory Action Research: An Indigenous Research Methodology Strengthening Decolonisation and Social and Emotional Wellbeing. (Lowitja Institute Discussion Paper Series). The Lowitja Institute.

Bond, C. J., Singh, D., & Tyson, S. (2021). Black bodies and bioethics: Debunking mythologies of benevolence and beneficence in contemporary Indigenous health research in colonial Australia. Journal of Bioethical Inquiry, 18(1), 83-92.

Australian Commission on Safety and Quality in Health Care. (2018). National Safety and Quality Health Service Standards: User Guide for Health Services Providing Care for People with Mental Health Issues.
Australian Health Ministers’ Advisory Council. Standing Committee for Aboriginal and Torres Strait Islander Health Working Party. (2004). Cultural Respect Framework for Aboriginal and Torres Strait Islander Health, 2004-2009. Department of Health, S. Aust.
University of Wollongong. Woolyungah Indigenous Centre, (author,) (2019). You can’t say that! : hints and tips. University of Wollongong, [Wollongong, New South Wales]
Queensland Aboriginal & Torres Strait Islander Health Branch (2015). Sad news, sorry business: guidelines for caring for Aboriginal and Torres Strait Islander people through death and dying. Brisbane: Queensland Health.
Dudgeon, P., Bray, A., Darlaston-Jones, D., & Walker, R. (2020). Aboriginal Participatory Action Research: an Indigenous Research Methodology Strengthening Decolonisation and Social and Emotional Wellbeing.
Commonwealth of Australia, Department of the Prime Minister and Cabinet, Keeping Our Kids Safe: Cultural Safety and the National Principles for Child Safe Organisations
Australian Institute of Health and Welfare (2021, April 29). Cultural safety in health care for Indigenous Australians: monitoring framework
McKivett A, Glover K, Coffin J, Paul D, Hudson JN, O’Mara P. The role of governance in Indigenous medical education research. Rural and Remote Health [Internet]. 2021;21.
Curtis, E., Jones, R., Tipene-Leach, D., Walker, C., Loring, B., Paine, S. J., & Reid, P. (2019). Why cultural safety rather than cultural competency is required to achieve health equity: a literature review and recommended definition. International Journal for Equity in Health, 18(1), 1-17.