Exploring stakeholder perspectives in implementing patient-reported outcome measures in paediatric liver and heart transplant services
MacHSR Future Leaders Fellowship program
MacHSR Future Leaders Fellowship program
MacHSR Future Leaders Fellowship program
MacHSR Future Leaders Fellowship program
Collecting high quality data is crucial to informing health care changes, particularly during the COVID-19 pandemic. CoMaND (Collaborative Maternity and Newborn Dashboard), an interactive digital data display, was created to provide rapid access to maternity and newborn data for clinical services, allowing MACH maternity partners to monitor the indirect impacts of the pandemic on the maternity population.
Newborn blood screening tests are commonly performed using the heel lance procedure. Though understandably painful, high quality synthesised evidence reveals breastfeeding and skin-skin care (SSC) to have an analgesic effect for newborns. Unfortunately, these strategies are inconsistently used in practice for both healthy term newborns and preterm infants. There is need to investigate and address the barriers preventing this knowledge-to-action gap to reduce unnecessary pain during this procedure.
There is currently no standardised approach to identifying and following up high-risk newborns, including those with a prenatal diagnosis of congenital abnormality. High-risk newborns are at risk of poor health and delayed developmental outcomes. Early intervention is key to support infants and families, yet there remains a disconnect between research and clinical practice.
Hip displacement is a serious complication of cerebral palsy (CP), occurring in 85 percent of non-ambulant children. It develops insidiously. If detected early, treatment is effective. If not, hip dislocation occurs, causing intractable pain, reduced function and quality of life extending across the lifespan. There is no effective treatment for hip dislocation.
Despite being an increasing public health concern, and a 40 percent rate of debilitating, persisting post-concussive symptoms (PCS), current knowledge regarding child and adolescent concussion is inadequate to direct effective, timely, low cost treatment. To date, clinical management has failed to recognise the vastly different needs of the individual child.
Asthma is the most common chronic childhood illness and accounts for most paediatric hospital admissions. Approximately 1 in 5 Australian children are re-admitted to hospital after their first admission. To prevent frequent, costly admissions, we need to understand factors in a child’s care journey associated with re-admissions.
Epileptic encephalopathies (EEs) are severe epilepsies that begin in infancy and childhood with devastating outcomes. Children have uncontrolled epilepsy, severe to profound developmental impairment, and other conditions such as autism spectrum disorder and high mortality risk.