Research Area: Paediatrics
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Uncovering the burden of youth onset Type 2 Diabetes Mellitus in Victoria
Uncovering the burden of youth onset Type 2 Diabetes Mellitus in Victoria
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Exploring stakeholder perspectives in implementing patient-reported outcome measures in paediatric liver and heart transplant services
MacHSR Future Leaders Fellowship program
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Coordinated follow up of infants exposed antenatally to alcohol and other drugs
MacHSR Future Leaders Fellowship program
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Cystic Fibrosis (CF) virtual care – remote monitoring and automated treatment plans
MacHSR Future Leaders Fellowship program
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CoMaND
Collecting high quality data is crucial to informing health care changes, particularly during the COVID-19 pandemic. CoMaND (Collaborative Maternity and Newborn Dashboard), an interactive digital data display, was created to provide rapid access to maternity and newborn data for clinical services, allowing MACH maternity partners to monitor the indirect impacts of the pandemic on the maternity population.
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Be Sweet to Babies
Newborn blood screening tests are commonly performed using the heel lance procedure. Though understandably painful, high quality synthesised evidence reveals breastfeeding and skin-skin care (SSC) to have an analgesic effect for newborns. Unfortunately, these strategies are inconsistently used in practice for both healthy term newborns and preterm infants. There is need to investigate and address the barriers preventing this knowledge-to-action gap to reduce unnecessary pain during this procedure.
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‘Find and Follow’: scoping the data capture, reporting and follow-up of (i) pregnancies complicated by congenital abnormalities, (ii) health and development among ‘high risk’ newborns.
There is currently no standardised approach to identifying and following up high-risk newborns, including those with a prenatal diagnosis of congenital abnormality. High-risk newborns are at risk of poor health and delayed developmental outcomes. Early intervention is key to support infants and families, yet there remains a disconnect between research and clinical practice.
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Hips on Track: A state-wide approach to preventing hip dislocation for young people with cerebral palsy
Hip displacement is a serious complication of cerebral palsy (CP), occurring in 85 percent of non-ambulant children. It develops insidiously. If detected early, treatment is effective. If not, hip dislocation occurs, causing intractable pain, reduced function and quality of life extending across the lifespan. There is no effective treatment for hip dislocation.