Project Lead
Ms Ingrid Sutherland
BIO
Children with a severe neurological impairment (SNI) require high level specialist care at home. The burden of care can lead to carer burnout and poor health outcomes for children and families. Children with SNI are eligible for the National Disability Insurance Scheme which funds varied disability care, including respite. Resource allocation, expenditure, provision of care, and family experience is poorly understood. Anecdotal evidence suggests there is inequity in respite resource allocation and service provision, placing vulnerable children and families at risk of poor health outcomes. This doctorate aims to understand the current state, benefits and challenges of respite care for children with SNI in Australia.
- May 20224: European Academy Of Childhood Disability (Bruges) Oral Presentation, Instructional Course:”An ethics toollkit for clinicians caring for children and adolescents with severe neurological impairment (SNI)” Presenters: G Antolovich, M Cooper, Z McCallum, I Sutherland.
- September 2024 -15thNational Paediatric Bioethics Conference Oral Presentation “Keeping your balance on the endless tightrope: Interdisciplinary challenges with clinical decision making” Presenters: Ingrid Sutherland, Madeline Pilgrim, Sarah Loveday
- October 2024: Royal Children’s Hospital Nursing Research and Clinical Innovations Symposium Oral Presentation “Health service utilisation of children with cerebral palsy secondary to hypoxic ischaemic encephalopathy” Presenter: Ingrid Sutherland Royal Children’s Hospital Nursing Research and Clinical Innovations Symposium Poster Presentation: “Higher than expected residual volumes of intrathecal baclofen – a useful indicator?” Presenter: Ingrid Sutherland
- Melbourne Disability Institute Graduate Research Support Fund ($3,000)